Hi All! I am posting an update because I have been given some good news. I had a CT scan on Thursday and a PET scan today. Usually when I have a PET scan they don't say anything and I have to wait until the report is generated before I know anything. However today the tech was nice enough to let me see my actual scan. The cancer was definitely visibly smaller with a lower sugar uptake. This is very good news. After I left the scan I met Jack at the imaging center where I had my CT scan done and we went over the results. The cancer used to show up as half a dozen larger lymph nodes and 5 different chains of scattered smaller lymph nodes. Now there was only 2 enlarged lymph nodes left and the smaller ones were mostly gone. I will get the actual report next week and I will let you know what that says, but as of now I am happy to say that the cancer is shrinking.
I apologize for not posting sooner. Life has been so hectic lately. I finally started once a week IPT sessions last week and being able to stay in my own bed in my own house every night has helped. It is exhausting flying out to New York and home in the same day, and it makes for a really long day, but at least I am home at night. I haven't had any more complications from treatment thankfully. Week 3-Week 6 were really intense for me. I experienced many side effects from the chemo and I generally just didn't feel well. I stopped running for those weeks and couldn't even get motivated to walk, which is so unlike me. However Week 6 I took a turn for the better. The random vomiting stopped and the nausea supsided. The neuropathy is still present, and my eyes do still occasionally throb and hurt, but all in all I feel better.
My IPT doctor thinks that maybe the Gc MAF has finally kicked in, and I think that maybe the autohemologous injections are helping as well. I have started running again, although I am still having some chest pain during my runs, it seems to be residual from the damage that was done by the Doxyrubicin. I wish I had never taken that drug. I hope that someday with all the detox I am doing that the damage from the Doxy can be reversed.
I should be getting my PET scan either next week or the week after. I am a little nervous about the scan. The last time I had one I thought I was getting better, when I was actually getting worse. Although this time I can see how I was in denial before, am I in denial now? I really hope not. I don't think I can handle bad news. I really need this to be working. We have put so much time and energy into this treatment not to mention the huge amount of debt we have accrued in hopes that this treatment will work.
I long to have my life back. I wish we could go back to a world where cancer was not a part of our life. Unfortunately cancer has changed my life forever. The fear of cancer will always be in the backs of our minds, even if I beat it this time. How do you live life knowing the cancer might come back? Do you go back to school and finish your master's? Do you stay at home and try to enjoy every moment of life? Do you live in fear? Or are you fearless? I don't know where you go from here. I have so many books on cancer, but maybe what I really need is a book on how to live your life after cancer.