Sorry it has been a while since I last wrote anything. I have been very busy with getting ready for my trip to New York. I am finally here and today I spent over 4 hours at my new doctor's office. I was not sure what to expect when I arrived, but I am feeling very confidant in my new doctor's ability to help me beat cancer.
When I first arrived I was introduced to the head nurse and was escorted to her office to talk with her. She explained what I could expect from the treatment and what I would need to bring with me (lots of specific types of food to bring me back from the edge of insulin depletion). While Jack and I were with her Dr. L called and said he was ready to see us. We were escorted to his office. My first impression of him was that he was a well dressed (although not pretentious looking) man in his late 40's early 50's (He is actually closer to 70). He took his time getting my history and we talked about my current treatments, including Gc MAF which he is familiar with. We also talked about my reluctance to take prednisone or any steroid due to its effects on scleroderma. He listened and was very sympathetic and agreed to skip the prednisone. As we talked he kept me aware of what tests he was ordering and what his thought process was for each one. I found myself liking him even more than I thought I would. He was very patient and listened to everything Jack and I had to say without cutting us off, he also was open to my continuing the rest of the alternative treatments I was on (he even had a few more to add).
There was only one thing we talked about that left me feeling a little unsettled and that was when he was mentioning to me the correlation between autoimmune (scleroderma and hashimoto's) with cancer and that Celiac's disease was a likely factor. He mentioned that people with Celiac's who were left untreated would usually develop autoimmune disease or lymphoma. He thought that my history was screaming Celiac's disease. I told him that I had taken a number of blood tests for Celiac's that were negative and one stool sample test that was positive. He said that he thought that Celiac's probably played a big role in my health (or lack thereof).
When I left his office to have labs drawn (which included a genetic test for Celiac's to determine once and for all if I had the diseaes). We had a plan of action formulated and it was very all inclusive. We were going to attack the problem on every front with a goal of taking away the triggers that allowed me to get Hashimoto's, Scleroderma and cancer to begin with. I was excited!
He also mentioned that I needed to give up drinking juice. I love orange juice (and grape juice). I was pretty annoyed with that, although I can't argue with his reasoning. He said that orange juice was said to deplete your bodies NK (natural killer cells) for 12 hours after drinking one glass. Well I needed all my NK's working full time on cancer fighting duty, so I guess juice was out.
He said that he hoped I tested positive for Celiac's disease, he said that my chances of getting rid of the lymphoma for good and getting better in general would be much better if I had the disease and could alter my diet. Out of all of the things that he said to me this one affected me the most. I had tried eating gluten free (celiac diet) last year for 2 months and I HATED it. Actually hate was a pretty kind word for how I actually felt about the diet.
I LOVE pasta. I LOVE bread. I am part Italian (I often joke that the "part" Italian I am is my diet). I don't want to think of living in a world without pasta and bread. They are my favorite food. I am not a candy or a cake person I am a pasta and bread person. How could I live forever without them. You may say that I should be happy that I have a possibility of getting better and be grateful for that and I am, but I am also angry. All my favorite foods and drinks will be gone forever to me! No more of my favorite diet coke (I still dream of you), maybe we will meet again in another life (although many, many years from now). Goodbye to juice. I love you too. Also I had to say goodbye to any drink with sugar or aspartame or any artificial sugar in it. What else is there to drink? I was left with coffee and unsweetened tea, yuck to both. I have started to drink both, for what else is there? I am angry at the cancer! Cancer does not get to win. I will do what I have to do to beat this disease and I will be stronger for it. I just need a few minutes to complain and then it's back to being a fighter.
I go in tomorrow to start my first round of IPT. It is time to kick some major cancer butt.