I am so sorry it has been so long since I posted. It has been a year filled with ups and downs and triumphs and falls and I would like to share them all with you.
My last dose of chemotherapy was at the end of January of 2012. That dose seemed to be the start of a few new symptoms that included what I can only describe as internal shaking that would sometimes force external movements or shaking. At that time I was also dealing with some shortness of breath and chest pain as well as some difficulty climbing stairs. None of the last three symptoms were new, all of them I have had some issues with in the past, but somehow they were worse. In March after a month of feeling worse I went to a pulmonology appointment and was taken straight from there to the ER where I was admitted to the critical care unit for 5 days. While I was their I was diagnosed with a heart issue called Postural orthostatic tachycardic syndrome which basically means my body could not regulate my heart correctly and that was causing me all these heart symptoms. Well I left the hospital devastated and unable to walk 5 feet without gasping for air. March was definitely a low point for me. My cardiologist suggested exercise (even though he knew it would be difficult for me since I was so short of breath and in so much pain) but I said that if it would help I would suck it up and do it. During this same time I was also diagnosed with immunodeficiency syndrome (which I've probably had for years and may explain why I have acquired so many health issues). I struggled through April and May but seemed to be getting better and by June I knew I was better. I am now feeling like a new person. I am able to walk and even jog some and I am cancer free! I am not in pain often and I am feeling quite well for someone with so many health problems. My scleroderma seems to be behaving and so does my other health issues. Could I actually be on the mend?!? I really, really hope so. This has been such a journey and I know that I have some things that I have to take care of like my eyes (I have glaucoma and cataracts although neither is bad enough to recquire surgery or anything serious), and I need to take care of me, but maybe I am on the mend. The only lasting issue from the IPT that I seem to have is some aversion to food, but I was aversive to food before I got sick, so maybe that symptom is just a part of my personality.
I also want to add that I really enjoy hearing from you if you are reading my site.
Good luck to